Be yourself; Everyone else is already taken.
— Oscar Wilde.
This is the first post on my new blog. I’m just getting this new blog going, so stay tuned for more. Subscribe below to get notified when I post new updates.
Be yourself; Everyone else is already taken.
— Oscar Wilde.
This is the first post on my new blog. I’m just getting this new blog going, so stay tuned for more. Subscribe below to get notified when I post new updates.
Aspergers Syndrome (with a hard g, like you would say “burgers”) is a neurodevelopmental disorder, named after the Austrian doctor Hans Asperger. It was added to the DSM in 1994 and was a separate disorder to autism, in 2013 it was changed to Autism Spectrum Disorder as it came to light that Hans Asperger was responsible for the deaths of many children during WW2.
Here’s a link explaining changes made in the DSM
below is a report on Hans Aspergers appalling behaviour https://www.google.co.uk/amp/s/www.independent.co.uk/news/science/asperger-nazi-study-latest-proof-hans-autism-research-spiegelgrund-a8311181.html%3famp
Here is a blog which I came across many years ago, it has the most comprehensive list of Aspergers traits I’ve come across on line: https://www.google.co.uk/amp/s/taniaannmarshall.wordpress.com/2013/06/22/first-signs-of-asperger-syndrome-in-young-girls-pre-school/amp/
And another one by the same author http://www.aspiengirl.com/
(I’ve already covered the self talk on an earlier blog about Autism and ASD but didn’t go into the Aspergers Syndrome (ASD) properly)
I look back at the way I was as a child, I was socially awkward, as a teen I had a lot of social anxiety, I recall blushing which made me even more self conscious. My mum was extremely strict, my father was there physically but not spiritually. I believe I’ve got whatever he’s got, explains why he was and still is so passive, he just isn’t able to function properly. I had no social life other than family events, weddings and funerals! The anxiety continued throughout my academic, professional and personal life, I only just realised it is part of ADHD & Autism (have been referred for assessment). I have managed to overcome some of it, I’ve had to do with the kids, although I feel they haven’t been socialised as well as they could have been, it doesn’t help that I have a passive husband, history is repeating itself (my father was the same). It’s weird how I didn’t realise it was called social anxiety until I was in my 30s (I’m 41 now). Below are examples of situations where my anxiety kicks in:
Having to wait my turn to speak/ introduce myself to a group of strangers
Navigating strange places such as shopping centres, airports and hotels can be a little disorienting, sometimes even familiar places and routes can be too!
Driving to a new place is fine as long as I don’t get lost, the fear of getting lost worries me at times.
Going abroad is anxiety inducing, one time I took my 2 daughters to Portugal, my cousin and her hubby went a few days beofre was, going to the airport triggered me, I would have preferred to travel with them.
Entering a room where everyone (strangers) is already seated
The more different people are the more I struggle, also not comfortable with men, don’t have male friends and have very few female friends. I have a genuine interest in other cultures and religions but people tend not to warm to me. I think maybe I’m intrusive without realising, I have inadvertently offended people in the past.
Approaching sales assistant in shop can be difficult for me
one time I was too nervous to walk into McDonald’s and order some food, ordering from a menu in a restaurant made me uncomfortable too
Everyday exchanges feel awkward, eg if someone says, “hi, how are you?” I will say, “fine, thanks”. I feel too shy to say. “How are you?”.
I sometimes avoid eye contact or don’t maintain for long enough, at times this is deliberate, for example when I’m out and about I will ignore people I know by either looking away as I walk past or I change my route.
I avoid parent teacher meetings and school events, I managed to attend when the girls were in primary school then stopped going.
I find banter difficult to participate in, don’t always understand it, don’t like being teased and don’t tease others either. I take sarcasm seriously and don’t always know when someone is joking.
Sometimes I feel silly in social situations as I misunderstand things such as idioms and need an explanation , (eg. People who live in glass houses shouldn’t throw stones) I also tend to take things literally. Eg. My cousin said she went to a restaurant and had an upset stomach, she said something about paying the price for it, I thought she meant payment , she meant her upset stomach 🤦♀️
When I was a makeup artist a client said make me look better than the woman who’s makeup you did before me, I actually took what she said literally and said, “ok”, felt so silly when she pointed out it was a joke!
I tend to shut down in social situations, I talk alone but find it hard to converse in a group, sitting with a bunch of women is nightmarish, they all talk at once, the sound of everyone talking gets to my head, I either get up and walk away or shut down.
I have always struggled with customer service, frontline jobs difficult to do, when I was a student I worked in a supermarket on checkout and was extremely uncomfortable serving customers face to face, I hated having a person standing infront of me whilst I was seated. I didn’t like sitting in the staff canteen at break times either. I literally never got comfortable with my colleagues.
when I was a teenager I couldn’t even make a phone call, I was too shy to speak on the phone in a room full of people.
I can’t even have comfortable conversations with my father and brother, or any male member of my family to be honest.
I find it difficult to introduce myself, when I was at university, I wasn’t able to introduce myself before a presentation.
Initiating and maintaining friendships is difficult, I always feel people don’t like me, it doesn’t help that my facial expression is so blunted plus I’m so monotone, it’s as though I don’t make an impression, maybe it’s the way I carry myself. I do lack confidence and have low self esteem and body image which, people seem to pick on me.
If I feel slighted in a social situation, I either remain passive or become aggressive, what I don’t do is assertion!
I don’t like joking with people I don’t know, small talk with strangers is awkward.
I find it difficult to assert myself, I either remain passive in a situation where I feel slighted or I get into a confrontation.
I tend to feel inferior to people and uncomfortable when talking to people in authority, such as police, tax/ customs official, I would really struggle if I had to meet a member of the royal family for example or the prime minister! I genuinely feel people don’t like me, can be a bit paranoid .
If a checkout assistant says hello to the customer in front and doesn’t say hi to me, I can feel slighted. I usually walk away with my ears perked up to see if they say hello to the customer after me .
I would love to enter master chef, Britain’s best home cook and publish a book, have a more sociable lifestyle, travel and make meaningful conversations and friends but my brain won’t allow it. Im just too afraid to apply, I’m not working so can’t fund my book, keep meaning to start a food blog and get a digital camera so I can take better pictures. I’m just very upset as I can’t do it, it’s my mood and motivation which is messing things up, I start projects and never complete them, ADHD is hell .
I tend to fade into background at family gatherings, I’m usually the host, don’t like being a guest.
I have burned bridges in every area of my life usually over perceived slights
I don’t like sitting In a restaurant or cafe myself, If I am meeting up with a friend and get there first, I choose a table around the edge of the restaurant, I avoid the centre, I use my phone as a distraction until they arrive. I feel to self conscious to eat or drink alone in a cafe/restaurant.
I avoid meeting my friends friends/ family, especially their husbands !
I don’t even like meeting my families extended family/ friends.
I tend to get picked on and pushed around, it has everything to do with the way I look and carry myself. I tend to be defensive for that reason. I actually look younger than I am, I’m also a tad socially and emotionally immature, which doesn’t do me any favours.
I have experienced very debilitating bouts of depression throughout my life and as a result been treated for unipolar depression. I realised very late in life that I have other problems going on and that antidepressants don’t work for me. I tried every anti depressant going, they calmed the depression but made the fleeting thoughts and talking worse (could potentially be the hypomania part of bipolar) and if that’s the case I was misdiagnosed and prescribed the wrong drug.
Mental/ neurodevelopmental problems can be difficult to diagnose, the outcome is based on what you tell the health professional and what they ask you. I was treated for depression because that’s all I told them but as the years have gone on, I’ve started to piece together all the other problems and realised I don’t have unipolar depression.
I came across this blog post which describes the talking https://www.bphope.com/bipolar-stories-video-blog/video-conversations-in-my-mind/
People are really starting to open up about the self talk, it’s everywhere (just google it and see for yourself). I think half the population are wired up differently, that combined with environmental factors is what’s making people ill. For some, self talk may not be a problem, for me it’s disruptive as it affects my mood and motivation. Throughout my life I have spent more time talking to myself than I have with family, my hubby and kids know I do it, they just leave me to it. This behaviour makes me isolate myself. Here’s another link which mentions self talk as a symptom of bipolar hypomania:
https://themighty.com/2018/12/embarrassing-symptoms-bipolar-disorder/
Heres a video I came across on You tube, Julie Kraft gives a helpful insight into bipolar disorder :
https://m.youtube.com/watch?v=XrJmKiwxrfU
here’s her website:
Natasha Tracy’s website, you can find her on YouTube too. https://natashatracy.com/
https://m.youtube.com/playlist?list=PLdLpWGRCe3SOf4lIFGB0snWpChv-H8mbz
https://m.youtube.com/channel/UCok5JeP_h0Emlw0EoPFlPdQ
Hannah Blum
https://m.youtube.com/watch?v=YjySAWKy-wo&list=PLdLpWGRCe3SOSGi268XlwMmxoCxH6h6NQ&index=137&t=0s
Julie A. Fast
Personal story from someone talking about the stigma and isolation which comes with bipolarhttps://www.nami.org/Personal-Stories/How-Invalidating-My-Bipolar-Disorder-Invalidates-M
Another informative YouTube channel I come across, ‘bipolar line’ by Deborah Mannhttps://m.youtube.com/user/TheDeborahMann
People with autism also talk out aloud and have conversations alone, I came across this site online:
Here’s another one which looks at intervention for teachers when dealing with autistic children who self talk. I have been referred to an ADHD/ASD specialist, this could be my problem after all, I have always struggled with the social side of life and my social anxiety has resulted in a strong avoidant streak.
https://www.brighthubeducation.com/special-ed-neurological-disorders/94866-intervention-when-a-student-with-autism-talks-to-himself/
This woman’s story describes my life!
https://www.google.co.uk/amp/s/marshaengland.wordpress.com/2018/03/06/the-self-talk/amp/
very interesting blog post about Autistic burnout https://theautisticadvocate.com/2018/05/an-autistic-burnout.html
’Autistic individuals do not dream like non autistic people’https://www.medicalnewstoday.com/articles/43418.php#1
After being referred to an ADHD specialist I started researching the talking thing online I came across an ADHD website and posted in one of the forums. I was amazed at the responses, I realised that I’m not alone and it really could be ADHD, as mentioned in an earlier post I am on a waiting list for assessment, the psychologist who referred me couldn’t explain the talking, click here:https://www.additudemag.com/forums/topic/i-talk-to-myself/
I also commented under an article on the site, you can read the responses here https://www.additudemag.com/talking-to-yourself-is-it-crazy-or-an-adhd-coping-strategy/
Here’s a video, in which Thomas E. Brown sums up ADHD perfectly https://m.youtube.com/watch?v=ouZrZa5pLXk
I came across a video on YouTube which shows a woman talking to herself, it’s a negative symptom of Schizophrenia, my only criticism would be the overt filming, she was aware of the camera being there, it might have affected her overall behaviour, not sure how real it is. To get a genuine insight, the filming would have to be covert: https://www.youtube.com/watch?v=UctKzltQIdc
I’ll post another video of a woman who’s mother has schizophrenia, watch how she stops talking to herself when her daughter walks in on her, she acts “normal”, I do that when I get caught out, usually when my hubby or kids walk into the room.
https://www.youtube.com/watch?v=QSzPk4T_I2M
Finally a list of early schizophrenia symptoms, the talking behaviour is mentioned as a negative symptom
http://www.schizophrenia.com/earlysigns.htm
Came across this channel on YouTube last night, I’m pretty certain I have Schizophrenia after watching the lady’s videos. It’s weird as I asked a GP in 1995 at the tender age of 16, “is it schizophrenia” , her response was “no it’s a coping mechanism!”
https://www.youtube.com/channel/UCR5_ez7c5rhC6mIpcs6tAWg/videos?disable_polymer=1
Another google search and another explanation! Here’s a link from Psych Central where someone posted a question anonymously, the therapist mentioned disassociation in this case. An in depth assessment would have to be carried out with the person prior to making a formal diagnosis, and it’s not a disorder/ disease in every case, it’s only a problem if you think it is, for me it definitely is, I hate that part of me.
https://psychcentral.com/ask-the-therapist/2018/01/16/talking-to-myself-acting-out-scenarios/
This term was coined by Professor Eli Somers, it’s fascinating and explains my behaviour but I have a whole load of other things going on too as mentioned in my previous post. I have posted a link to his YouTube channel here:
https://www.youtube.com/watch?v=oyzueBjNG6
More information about Eli Somers Research https://haifa.academia.edu/EliSomer
A YouTube user by the name of Samantha H from Label Free TV, demonstrates maladaptive daydreaming and completely nails it, she acts happy and giddy but I experience other emotions too, such as anger, rage, sadness, tearfulness… the works! Here’s the linkhttps://www.youtube.com/watch?v=hExkRvft46A&t=3s
I also came across a movie called ‘the secret life of Walter Mitty’ , haven’t watched it but it stars Ben Stiller who is a maladaptive day dreamer.
https://www.youtube.com/watch?v=Kj5XR32zs7E
Here is a blog post about excessive day dreaming https://daydreamingdisorder.webs.com/
The talking out loud started during adolescence, I was still living with my parents and recall the exact moment it happened, I was watching tv and said something out loud and it just continued. I still think I’m predisposed to a neurodevelopmental / psychiatric disorders and the hormonal changes triggered it.
I don’t have hallucinations, delusions or at least I don’t think it’s psychosis. I have real or imagined conversations, it’s like a movie plot unfolding in my head, sometimes I have rapid thoughts as though someone is flicking through the tv channels. Other times I ruminate and run through conversations I wish I’d had. A lot of the times though they are completely made up, random scenarios. I might for example pretend to be a therapist talking about me, other times I pretend I’m someone famous and important. The thoughts (daydreams) tend to be very vivid and coincide with a shift in mood, I experience actual emotions, so for example an angry thought causes an actual angry reaction, I usually pace and talk all over the house.
If my hubby or kids interrupt me suddenly I get really annoyed, mostly though I suppress this behaviour when someone walks in on me. When I have people over at my place or when I leave the house I suppress it, although lately my guard has started to slip, I do it whilst driving too. I find when I suppress the fleeting thoughts, it carries on in my head and makes me grimace, which people sometimes notice and point it out. The fleeting thoughts come out in conversation too, I jump from one topic to another and feel a compulsive urge to speak. When I was a beauty therapist I would talk non stop, I noticed other therapists worked quietly (at college when I was a student for example).
I also would interrupt lectures when I was at university, None of the other students did that, I’m actually surprised I never got a telling off from my tutors, again it was a compulsive urge to ask questions throughout lectures. I cringe when I think back!
In social situations, there are times when I can be sociable but on the whole I struggle, the more people the more I struggle, I prefer one to one interactions. I find it easier to be a host, being a guest is difficult for me. When I’m at home, I tend to stay in the kitchen and fade into the background, when I’m out of the home, it’s not possible to disappear to my room so I remain seated and shut down.
(I have a lot of other problems too: social anxiety, depression, mood swings, impaired cognition, poor concentration, disorientation which affect my daily functioning, currently I’m not working, I’ve become reclusive and leave the house only when I need to, I’ve also been avoiding people/ social situations and find it easier just to stay home as normal everyday things have become difficult to do).
The first symptom I noticed as a teenager was depression, I realise into my 40s that I was emotionally disabled and had severe social anxiety, which caused an (undiagnosed) eating disorder, the idea was to make myself ill enough to stay home, I just seemed to struggled around people, all the time. I wasn’t like the other girls at all and preferred solitude, the school environment didn’t suit me.
I went to my GP and mentioned I was depressed , therefore I was treated for unipolar depression alone. I tried every antidepressant known to man, they caused a whole load of side effects, provided little relief from the depressive symptoms and made the following symptoms worse:
Fleeting/ vivid thoughts, excessive day dreaming, shift in mood, actual emotions, pacing around, talking to myself.
I only managed to stay on each anti depressant for a few weeks before stopping them abruptly and as a result I experienced horrendous withdrawal. I would then muddle through for weeks or months, until I couldn’t cope anymore and I would be back to square one, my GP would prescribe a different anti depressant. After 25 years you’d think someone would have realised that my problem wasn’t unipolar depression, I actually think it might be bipolar, although I’ve been referred to an ADHD specialist for assessment. Bipolar is a mood disorder, ADHD is a Neuro developmental disorder, the 2 are similar in many ways, so I’ll have to wait and see what happens when I get my appointment through, it’s been 14 months already, still haven’t heard from the ADHD/ Autism clinic